[1]
|
沈永年, 王慕逖. 矮身材儿童诊治指南[J]. 中华儿科杂志, 2008(6): 428-430.
|
[2]
|
Wheeler, P.G., Bresnahan, K., Shephard, B.A., Lau, J. and Balk, E.M. (2004) Short Stature and Functional Impairment: A Systematic Review. The Ar-chives of Pediatrics & Adolescent Medicine, 158, 236-243.
https://doi.org/10.1001/archpedi.158.3.236
|
[3]
|
Bloemeke, J., Silva, N., Bullinger, M., Witt, S., Dörr, H.G. and Quitmann, J. (2019) Psychometric Properties of the Quality of Life in Short Statured Youth (QoLISSY) Questionnaire within the Course of Growth Hormone Treatment. Health and Quality of Life Outcomes, 17, Article No. 49. https://doi.org/10.1186/s12955-019-1118-9
|
[4]
|
Varni, J.W., Seid, M. and Kurtin, P.S. (2001) PedsQL 4.0: Relia-bility and Validity of the Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in Healthy and Patient Pop-ulations. Medical Care, 39, 800-812.
https://doi.org/10.1097/00005650-200108000-00006
|
[5]
|
Bullinger, M., Quitmann, J., Power, M., Herdman, M., Mimoun, E., DeBusk, K., Feigerlova, E., Lunde, C., Dellenmark-Blom, M., Sanz, D., Rohenkohl, A., Pleil, A., Woll-mann, H. and Chaplin, J.E. (2013) Assessing the Quality of Life of Health-Referred Children and Adolescents with Short Stature: Development and Psychometric Testing of the QoLISSY Instrument. Health and Quality of Life Outcomes, 11, Article No. 76.
https://doi.org/10.1186/1477-7525-11-76
|
[6]
|
Tanaka, T., Tai, S., Morisaki, Y., Tachibana, K., Kambayashi, Y., Chihara, K., Seino, Y. and Fujieda, K. (2009) Evaluation of Quality of Life in Children with GH Deficiency and Idio-pathic Short Stature Using the Child Behavior Checklist. Clinical Pediatric Endocrinology, 18, 15-22. https://doi.org/10.1297/cpe.18.15
|
[7]
|
程灶火, 高北陵, 彭健, 雷莉芳. 儿少主观生活质量问卷的编制和信效度分析[J]. 中国临床心理学杂志, 1998(1): 11-16.
|
[8]
|
卢奕云, 田琪, 郝元涛, 静进, 林愈灯, 黄定群. 儿童生存质量测定量表PedsQL4.0中文版的信度和效度分析[J]. 中山大学学报(医学科学版), 2008(3): 328-331.
|
[9]
|
Tanaka, T., Tai, S., Morisaki, Y., Tachibana, K., Kambayashi, Y., Chihara, K., Seino, Y. and Fujieda, K. (2009) Evaluation of Quality of Life in Children with GH Deficiency and Idiopathic Short Stature Using the Child Be-havior Checklist. Clinical Pediatric Endocrinology, 18, 15-22. https://doi.org/10.1297/cpe.18.15
|
[10]
|
Sommer, R., Blömeke, J., Bullinger, M. and Quitmann, J. (2018) The Psychometric Evaluation of the Quality of Life in Short Stature Youth (QoLISSY) Instrument for German Children Born Small for Gestational Age. Journal of Endocrinological Inves-tigation, 41, 1185-1191. https://doi.org/10.1007/s40618-018-0850-z
|
[11]
|
Quitmann, J., Bloemeke, J., Silva, N., Bullinger, M., Witt, S., Akkurt, I., Dunstheimer, D., Vogel, C., Böttcher, V., Kuhnle Krahl, U., Bettendorf, M., Schönau, E., Fricke-Otto, S., Keller, A., Mohnike, K. and Dörr, H.G. (2019) Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency within 1 Year of Growth Hormone Treatment. Frontiers in Pediatrics, 7, Article No. 164.
https://doi.org/10.3389/fped.2019.00164
|
[12]
|
乔建敏, 张梅, 孙海玲, 李萍, 邵倩, 班博. 矮小症儿童健康相关生活质量分析[J]. 中国实用儿科杂志, 2017, 32(3): 220-222. https://doi.org/10.19538/j.ek20170306015
|
[13]
|
Geisler, A., Lass, N., Reinsch, N., Uysal, Y., Singer, V., Ra-vens-Sieberer, U. and Reinehr, T. (2012) Quality of Life in Children and Adolescents with Growth Hormone Deficiency: Association with Growth Hormone Treatment. Hormone Research in Paediatrics, 78, 94-99. https://doi.org/10.1159/000341151
|
[14]
|
Tanaka, T., Hasegawa, T., Ozono, K., Tanaka, H., Kanzaki, S., Yokoya, S., Chihara, K., Iwamoto, N. and Seino, Y. (2014) Effect of Growth Hormone Treatment on Quality of Life in Japanese Children with Growth Hormone Deficiency: An Analysis from a Prospective Observational Study. Clinical Pediatric Endocrinology, 23, 83-92.
https://doi.org/10.1297/cpe.23.83
|
[15]
|
González Briceño, L.G., Viaud, M., Beltrand, J., Flechtner, I., Dassa, Y., Samara-Boustani, D., Thalassinos, C., Pauwels, C., Busiah, K., Pinto, G., Jaquet, D. and Polak, M. (2019) Improved General and Height-Specific Quality of Life in Children with Short Stature after 1 Year on Growth Hormone. The Jour-nal of Clinical Endocrinology & Metabolism, 104, 2103-2111. https://doi.org/10.1210/jc.2018-02523
|
[16]
|
Wallander, J.L., Varni, J.W., Babani, L., Banis, H.T., DeHaan, C.B. and Wilcox, K.T. (1989) Disability Parameters, Chronic Strain, and Adaptation of Physically Handicapped Children and Their Mothers. Journal of Pediatric Psychology, 14, 23-42. https://doi.org/10.1093/jpepsy/14.1.23
|
[17]
|
Visser-van Balen, H., Sinnema, G. and Geenen, R. (2006) Growing Up with Idiopathic Short Stature: Psychosocial Development and Hormone Treatment: A Critical Review. Archives of Disease in Childhood, 91, 433-439.
https://doi.org/10.1136/adc.2005.086942
|
[18]
|
张志平, 陶月红. 矮小儿童抑郁情绪及心理指导疗效分析[J]. 护理研究, 2008(25): 2312-2313.
|
[19]
|
熊菲, 黄丽丽, 杨凡. 学龄期矮身材儿童及家长的心理状况分析[J]. 中国儿童保健杂志, 2018, 26(6): 594-596+601.
|
[20]
|
王懿. 表扬艺术联合合理情绪疗法对学龄矮小症患儿自我认同感及生存质量的影响研究[J]. 中国医学创新, 2021, 18(5): 77-81.
|
[21]
|
郭思嘉. 家庭功能对矮小症患儿健康相关生活质量的影响[J]. 安徽卫生职业技术学院学报, 2020, 19(4): 132-133+150.
|
[22]
|
Quitmann, J., Rohenkohl, A., Som-mer, R., Bullinger, M. and Silva, N. (2016) Explaining Parent-Child (Dis)agreement in Generic and Short Stat-ure-Specific Health-Related Quality of Life Reports: Do Family and Social Relationships Matter? Health and Quality of Life Outcomes, 14, 150. https://doi.org/10.1186/s12955-016-0553-0
|
[23]
|
乔建敏. 矮小症儿童青少年健康相关生活质量及疲乏状况分析[D]: [硕士学位论文]. 济南: 山东大学, 2017.
|